Motor neurone disease care at home

Motor neurone disease home care

At Novus Care, we understand the challenges and changes that come with a diagnosis of motor neurone disease. We’re here to help you live life as comfortably and independently as possible throughout your journey with MND.

That’s why our care changes as your needs change. Perhaps you just want a few visits each week to stay on top of chores and exercises. Or maybe you need 24-hour care to manage your symptoms and stay safe at home. We’ll be by your side at every step, adjusting your care plan as needed and providing practical and emotional support to you and your family.

Whatever your unique needs, we always respect your dignity and your independence. Our expert carers will make sure everyone is comfortable with the level of care provided and only step in where needed. It’s all about making sure you can live life as fully as possible in the home you love.

What is motor neurone disease care?

Motor neurone disease care is a type of condition-led care for people living with motor neurone disease. That means it’s highly specialised and focused on managing the changing symptoms of the disease. Motor neurone disease care is provided by expert carers who understand these symptoms and know how to use specialised medical equipment.

At Novus Care, we focus on providing motor neurone disease care at home. With our highly trained carers on your side, you can stay at home and stay as independent as possible for as long as possible.

Your motor neurone disease home care options from Novus Care

Live-in motor neurone disease care

Live-in care is just what it sounds like: a carer will live with you at home and provide around-the-clock care. That means there’ll always be a trusted person there who can step in to help when needed. Live-in care might suit you if it’s getting harder to communicate or stay mobile, or if your family can’t provide the 24/7 care you need.

Visiting motor neurone disease home care

Do you live independently or have friends and relatives who often pop in to help? Visiting care could be the best option for you. We’ll work with you to draw up a care schedule, then send an expert carer to your home as often as you like. They can do chores, collect medication or help with washing and dressing – whatever you need to stay comfortable and independent at home.

Respite home care for motor neurone disease

We know it can be worrying when your usual carer has to take a break. That’s where respite care can help. This is a type of temporary care that’s designed to keep things smooth and stress-free for you while your carer is away. We’ll create a care plan that sticks to your usual routine and maintains the high standards of care you’re used to.

Overnight motor neurone disease care

This type of care might be a good choice if you have help at hand during the day but need extra support at night. A carer will stay from evening until morning, ready to help with personal care, mobility or anything else you need to feel comfortable and rested. And if something does go wrong, they’ll step in to keep you safe. That means extra peace of mind for you and your family.

Motor neurone disease palliative care

Motor neurone disease palliative care is specialised care for people in the advanced stages of MND who may be nearing the end of their life. It focuses on providing comfort, companionship and emotional support to the person and their family. Delivered by trained palliative carers, it’s designed to help people make the most of their time at home surrounded by those who matter most.

Not sure which type of care is best for you? We can help. Get in touch with our friendly team and we’ll put together a motor neurone disease care plan that’s tailored to you and your MND journey.

Your motor neurone disease care plan

When you choose Novus Care, we’ll work with you to create a unique motor neurone disease care plan. It’s tailored to you and adapts as your needs change. That means you’ll always get the right level of support as your condition progresses. Every care plan is different and is completely flexible. Yours could include:

• Therapeutic support: we’ll help you put occupational therapy and physiotherapy into action by making time for exercises and accompanying you to appointments.
• Medication support: we’ll help you stay on top of your changing medication requirements and make sure you have the supplies you need.
• Independent living: we’re here to support you with housework, personal care and errands so you can maintain your independence at home.
• Mobility support: our carers are trained in manual handling techniques and will work hard to keep you safe and mobile.
• Specialised care: we know your care needs will change with time. We’ll have experts on hand to support you with specialised care and advanced equipment when you need it.
• Companionship: everyone needs a little companionship as they go through their MND journey. Our carers offer emotional advice and support to the whole family.

Motor neurone disease care FAQs

What is motor neurone disease?
Motor neurone disease is a progressive condition that affects the brain and nerves. It happens when motor neurone cells gradually stop working over time. Symptoms often start with weakness and clumsiness, slurred speech, poor grip and twitches. As the disease progresses, it can become increasingly difficult to move around, swallow, talk and breathe.

How do you care for someone with motor neurone disease?
While there’s no known cure for motor neurone disease, there are therapies that can help reduce its impact on a person’s daily life. Highly specialised clinics and occupational therapy can make daily tasks easier. Physiotherapy can help maintain strength. And speech and language therapy can help with communication.

Many people living with motor neurone disease also need daily care. At Novus Care, we provide day-to-day practical assistance and emotional support to help make home life as comfortable and fulfilling as possible.

What is a nursing care plan for motor neurone disease?
When you choose Novus Care for motor neurone disease care at home, we’ll work with you to create a tailored nursing care plan. Built around our MND expertise and your unique health needs, it makes sure you receive the right level of care at every stage of your journey.

When is the right time to choose live-in motor neurone disease care?
It all depends on how much support you need and who’s around to help. If you live independently or have a strong support network of family and friends, you might not need daily care. But if your symptoms have progressed and you don’t have full-time support, live-in care can help you stay comfortable at home for as long as possible.

How much will I pay for motor neurone disease care at home?
The cost of motor neurone disease home care depends on the level of support you need and how often you need it. Why not contact our team to discuss your unique needs and get a tailored home care quote?

Can I get help to pay for my care?
Your local council may be able to help fund the cost of your care. Whether you’re eligible and what you might receive depends on your financial circumstances. Learn more about how to fund care.

How to arrange motor neurone disease care at home

Let’s find the right level of support for you. Whether you have a few questions or you’re ready to try home care, our friendly team is here to help. Chat with us today and we’ll start putting together a motor neurone disease care plan tailored to your needs.
📞 0800 138 4030 or email us: [email protected]