Huntington’s homecare

Huntington’s disease care, tailored to you and your family

At Novus Care, we understand how challenging a diagnosis of Huntington’s disease can be – for you, and for your family, too. As well as dealing with the emotional and physical impacts of the condition, many families feel there’s no option but to consider long-term residential nursing care.

But there is an alternative. With our Huntington’s homecare service, you receive 24/7 care from a highly trained carer who lives with you at home. That means none of the upheaval of moving to a residential home. Instead, you get specialised, one-to-one support in familiar surroundings, so you stay as comfortable and independent as possible for as long as possible.

We also understand that Huntington’s disease can present complex challenges – and that the condition affects everyone differently. That’s why our care plans are designed specifically for Huntington’s disease and tailored to the unique needs of you and your family. It’s all about making sure you can make the most of life in the home you love.

What is Huntington’s disease care?

Huntington’s disease care means any type of specialised support for people living with Huntington’s disease. Because the symptoms of the condition can vary widely, this support is tailored to the individual and adapts to accommodate their changing needs.

A Huntington’s disease care plan might include speech therapy, dietary support, neuropsychiatry and other expert medical care. Many people living with Huntington’s disease also receive 24/7 home care from specialist care agencies like Novus Care.

Your live-in Huntington’s disease care plan

When you choose Novus Care, you receive specialised, long-term care for Huntington’s disease in the comfort of your own home.

How it works is simple. We send a carer to live with you in a spare bedroom. They’ll be there around the clock, providing one-to-one support to help you stay comfortable and manage your symptoms at home. You’ll get to know them well, and they’ll follow a bespoke care plan based on your unique needs and the things you want to do.

This kind of tailored, at-home care is especially beneficial for people living with Huntington’s disease. That’s because:

• Receiving care in a familiar environment provides stability, helping to reduce stress – essential for managing the progression of the condition.
• Care can be highly personalised and flexible, adapting to routines and requirements. This helps make sure our care is effective and that it respects your dignity and lifestyle choices.
• You receive a constant standard of care from known, trusted caregivers. That sense of routine is vital for people living with Huntington’s disease.
• We’ll adapt your care as your needs change, too, and discuss these changes with you and your family. This approach means you always get the right kind of support and you always have a say in the care we provide to you.

What can my carer help with?

Your live-in carer is there to help you manage your condition and support you with day-to-day living. Huntington’s homecare looks different for everyone, but it could include:

• Personal care: helping with bathing, dressing and other personal hygiene needs
• Health support: making sure medications are taken properly and helping you get to medical appointments
• Meal preparation: preparing nutritious, balanced meals tailored to your dietary needs
• Exercise support: helping you maintain a regular exercise routine, guided by our carers
• Collaborative care: working with neurologists, dietitians, speech therapists and other healthcare professionals to provide consistent, wraparound care
• Housekeeping: handling cleaning, laundry and other household chores
• Companionship: being there to help you cope with anxiety and soothe loneliness

Huntington’s disease end-of-life care

It’s important for everyone living with Huntington’s disease to feel comfortable and supported, no matter the stage of their condition.

Our Huntington’s disease end-of-life care specialists are there to provide compassionate, one-to-one support for those nearing the end of their lives. They’ll work with medical staff to make sure those last days are spent in comfort, safety and dignity. It’s around-the-clock support, too, so families can rest assured there’s always someone around to care.

Specialised care for Huntington’s disease from highly trained local carers

At Novus Care, we have highly trained carers ready to support you in towns and cities across England. We’re very proud of our carers. They understand how to care for someone with Huntington’s disease and are passionate about providing person-centred, deeply compassionate care.

For you and your family, that means peace of mind. With Novus Care, you receive a consistent standard of care from knowledgeable local carers, overseen by an established, CQC-registered care agency.

Huntington’s homecare vs residential care

As Huntington’s disease progresses, it’s common to require 24/7 care – either at home or in a residential nursing home. At Novus Care, we believe that receiving Huntington’s disease care at home is the best option for most people. Here’s why.

Your Huntington’s disease care questions answered

What is Huntington’s disease?
Huntington’s disease is a nervous system disorder, meaning it affects the brain, spinal cord and nerves. It’s a progressive disease (the symptoms gradually get worse over time), and there is currently no known cure. However, with coordinated care from trained specialists, it’s possible to stay comfortable and independent for longer.

What are the symptoms of Huntington’s disease?
The symptoms of Huntington’s disease can vary greatly from person to person, even within the same family. However, it usually affects three main areas:

• Movement: Huntington’s disease often causes involuntary movements. These can increase over time, making it difficult to perform the actions you want.
• Cognition: people living with Huntington’s disease may face challenges with planning and thinking clearly.
• Behaviour: it’s common for Huntington’s disease to cause changes in behaviour and personality.

What causes Huntington’s disease?
Huntington’s disease is almost always hereditary, meaning it’s passed down from parents to children. If a parent has Huntington’s disease, their child has a 50% chance of inheriting the condition.

What are the first signs of Huntington’s disease?
Most people living with Huntington’s disease first experience symptoms between the ages of 30 and 50. Early signs can include:

• Involuntary twitching movements (chorea)
• Feeling irritable
• Finding it harder to focus, make plans or learn new things
• Experiencing depression

How do you care for someone with Huntington’s disease?
There’s no fixed approach for how to care for someone with Huntington’s disease. That’s because the condition affects everyone differently, and care needs can change significantly as symptoms progress. What’s most important is that the person living with Huntington’s disease receives holistic, tailored care that’s flexible enough to adapt as their needs change.

How much does Huntington’s homecare cost?
The cost of Huntington’s homecare is around the same as a residential care home – and sometimes less. That’s because our care can be customised to fit your budget and circumstances, so you pay for what you need – not an all-inclusive fixed cost.

Learn more in our guide to the cost of care at home.

How to arrange Huntington’s disease care at home

Are you ready to explore your Huntington’s homecare options? Whether you have a few questions or you want to book a live-in care trial, please get in touch with our friendly team. We’ll discuss your needs and can start putting together a tailored care plan for you.

0800 138 4030  or email: [email protected]