Muscular dystrophy care at home

Muscular dystrophy private care

At Novus Care, we know that living well with muscular dystrophy involves more than medical care. When you choose us, you get a full package of tailored support to help you feel fulfilled and comfortable in the home you love.

That means practical support, such as help with housework and running errands. It means tailored care for your health needs, ranging from administering medication to assisting with physiotherapy. And just as importantly, it means emotional support and advice for you and your family as you cope with the impact of your condition.

And because no two cases of muscular dystrophy are the same, we tailor our care to your unique needs. You can expect just the right level of support to help you maintain your dignity and your independence – whether that’s weekly visits or 24-hour care. Plus, with regular care reviews, our support adapts as your needs change. It’s all about making sure you have the help you need where you need it most.

What is muscular dystrophy care?

With muscular dystrophy care, you get specialist support for muscular dystrophy from trained carers who understand the condition and its symptoms. It’s a type of condition-led care. That means your care plan is built around your unique health needs and your personal experience of living with muscular dystrophy.

At Novus Care, we focus on providing private muscular dystrophy care at home. That’s so you can make the most of your daily life in familiar, comfortable surroundings.

Your muscular dystrophy care options from Novus Care

Live-in muscular dystrophy care

With live-in care, you get 24-hour care from a highly trained carer who understands your condition and your unique health and social needs. They’ll live in a spare room at home, so you’ll always have a trusted person around to help you stay safe, comfortable and mobile. Live-in care could suit you if you need around-the-clock support and don’t already have a full-time family carer.

Visiting muscular dystrophy care

Sometimes, our muscular dystrophy care clients only need occasional support. If that sounds like you, visiting care could give you the extra help you need to stay independent and stay at home. We’ll match you with a specialist carer and draw up a visiting care plan that suits your needs and lifestyle. That might mean daily visits or just a few hours each week – whatever works for you.

Muscular dystrophy respite care

Respite care is just as tailored and flexible as our other types of care. The difference is that it’s temporary. If your usual carer needs to take a break, we can cover for a week or so while they relax and recharge. Or we could step in for a few days while you decide what you want to do in the long term. In any case, you can expect a high standard of care and the same familiar daily routine.

Overnight support for muscular dystrophy

We know that muscular dystrophy is often more difficult to manage at night. With overnight care, we’ll send an expert carer to stay with you from evening until morning. It’s ideal if you don’t have support at night or want an extra pair of hands in case of emergencies. For you and your family, it means more peace of mind when you need it most.

Companionship care

Nobody should face living with muscular dystrophy alone. Our companionship carers offer the emotional support and encouragement you need to make the most of every day. They can help you stay on top of medication and exercises, accompany you on social outings or simply stop by for a chat. After all, a little conversation and company can make a big difference.

Not sure which type of care is right for you? We’re here to help. Contact our team and we’ll discuss how we can adapt our care to suit your needs.

Your muscular dystrophy care plan

When you choose Novus Care, we work with you to create a flexible muscular dystrophy nursing care plan. It’s built around your unique needs and designed to provide just the right level of support to help you live life your way. While we’ll never see you stuck for help, we aim to empower you to do more for yourself in line with your occupational therapy.

Every care plan is different because every person is different. Yours could include:

• Help around the house: your carer can help with light housework and daily jobs like cooking meals.
• Personal care: we’ll help you look and feel your best by supporting you with washing, dressing and using the toilet.
• Medical support: we can take you to health appointments, help you take medication and make sure you have the supplies you need.
• Help with physiotherapy: we’ll be there to support you with physiotherapy and occupational therapy, including helping you practise exercises.
• Sourcing equipment: some people require mobility equipment like crutches or a wheelchair. We can help you get the right equipment for your needs.
• Mobility support: we’ll work to keep you safe and as mobile as possible. That includes making sure your home is free of trip hazards.
• Specialised care: as your condition progresses, we’ll adapt our care to match your changing needs.

Muscular dystrophy care FAQs

What is muscular dystrophy?
Muscular dystrophy is an inherited genetic condition that causes muscles to weaken. It’s a progressive condition, meaning it gets worse over time.

The early signs of muscular dystrophy include clumsiness, frequent falls and trouble climbing stairs. However, the condition affects everyone differently.

There is no cure for muscular dystrophy. However, with long-term treatment and specialised care, many people can live active and fulfilling lives with the condition.

How do you care for someone with muscular dystrophy?
There’s a range of treatments available that can help people with muscular dystrophy manage their symptoms and live well with the condition. Low-impact exercise and physiotherapy can help maintain muscle strength and flexibility. Occupational therapy can help people do more at home. And physical aids like wheelchairs, leg braces and crutches can make it easier to stay active and mobile. Many people who live with muscular dystrophy also have home carers to support them with everyday life and help make the most of their therapies.

Is muscular dystrophy a disability?
It depends on how the condition affects you. In the UK, muscular dystrophy is legally considered a disability when it starts to impact normal, day-to-day activities.

What are the different types of muscular dystrophy?
There are many different types of muscular dystrophy with different symptoms. Not all of them will cause severe disability or affect life expectancy. Among the most common types are Duchenne muscular dystrophy and Becker muscular dystrophy.

Depending on the type of muscular dystrophy, it may be diagnosed in childhood, adulthood or later in life. Myotonic dystrophy, for instance, usually starts showing symptoms at ages 20 to 40.

Who can benefit from private muscular dystrophy care?
Anyone of any age who lives with muscular dystrophy can benefit from muscular dystrophy care. We’ve designed our specialised care services to adapt to your circumstances, your symptoms and your unique needs. That means you’ll always get the right level of support, whether you need a bit of occasional help or 24-hour live-in care.

Do you care for children and adults with muscular dystrophy?
Yes. At Novus Care, we work with people of all ages who live with muscular dystrophy.

How much does muscular dystrophy care cost?
We tailor our care to suit you. That means the cost of muscular dystrophy care can vary depending on how much support you need. Why not chat to our team about your circumstances and get a tailored quote?

Can I get funding to help pay for care?
Your local council may be able to provide funding to pay for all or some of your care. You might also be entitled to benefits that can help with day-to-day living costs. There are several UK muscular dystrophy charities that can advise on funding care and accessing the right benefits.

How to arrange private muscular dystrophy care at home

Are you ready to move forward with tailored home care? Whether you have a few questions or want to book a free care assessment, we’re here to help. Get in touch with our friendly team today to get started on 0800 138 4030 or email: [email protected]